News by email Donate

Suggestions

Top Stories

Most Read

Popular Videos

parliament_main_article_image.jpg
UK News

Christians with ME celebrate debate on condition reaching parliament

by Eno Adeogun

The long-term illness leaves 75 per cent of those affected unable to work and 25 per cent housebound or bedridden.

Tanya Marlow - a Christian with ME, told Premier many people do not understand what it's like living with it.

 

"ME varies in severity but one thing that is core to everyone is that it's like having a very low battery in your system that keeps on crashing very quickly and is not recharged properly," she explained.

"At the very severe end, it is absolute hell and it means even light and sound [is] interpreted by the body as pain.

"You can't move, you can't speak, you can't feed yourself and it is a life of darkness and pain for years and years."

The NHS lists a number of specialist treatments for ME, which is also described as Chronic fatigue syndrome (CFS).

These include cognitive behavioural therapy (CBT), medication, diet and supplements, sleep, rest and relaxation.

Graded exercise therapy (GET) - is a structured exercise programme that aims to gradually increase how long you can carry out a physical activity.

YouTube/ouhnhs

Marlow and other ME activists disagree with GET being offered in a treatment plan.

She claimed: "It's just cruel - graded exercise therapy is like prescribing sugar for diabetics. It's harming patients everywhere."

Marlow described the debate MPs will have about ME as a "victory".

She also said it was an "affirmation of the patient voice after being silenced for so long by a very powerful psychiatric lobby that's been saying that ME is caused by exercise phobia and is basically a behavioural disorder that can be cured by graded exercise and positive thinking".

She said she hoped there would be agreement on the two proposals in the motion that states Britain should invest in biomedical research for ME and GET should be scrapped.

Listen to Premier's Eno Adeogun speaking with Tanya Marlow:

Stay up to date with the latest news stories from a Christian perspective. Sign up to our daily newsletter and receive more stories like this straight to your inbox every morning.

Continue the conversation on our Facebook page

A Monthly Gift Of £8 Makes A World Of Difference

In a world of fake news there’s never been a greater need for quality Christian journalism. Premier’s mission is to provide the Church with the most up to date and relevant news, told from a Christian perspective. But we can’t do it without you.

Unlike many websites we haven't put up a paywall — we want to keep our journalism free at the point of need and as open as we can. Premier’s news output takes a lot of time, money and hard work to produce. No one in the UK is sharing news like we are across radio, magazines and online so please help us to continue that today.

For a monthly gift of £8 or more we’d also be able to send you a free copy of the brand new Premier Bible, a wonderful Anglicised version of the NLT packed with exclusive bonus content, reading plan and resources to help you get the most out of scripture.

Your monthly support will make a world of difference. Thank you.

Set up a monthly gift

Related Articles

Sign up to our newsletter to stay informed with news from a Christian perspective.

Connect

Donate

Donate